Friend Stories

Lucas

This sweet boy has been in our lives now for seven months, the best seven months of our lives. In January, we noticed some bumps on his back in the muscle between the ribs. We were initially dismissive, but the bumps kept getting larger. We ended up doing an ultrasound, then an MRI, then a …

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Carson

Carson was born hypotonic and started receiving physical therapy at 4 months of age. He was referred to neurology at that time as well. He was pretty much blind and his head circumference had increased 9 cm since birth. All body scans were completed and the MRI of his brain showed some changes within the …

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Isaac

Isaac was dx at 3 yrs old. He did four months of chemo and six weeks of proton radiation. He was cancer free for eighteen months and before he relapsed. He did two months of chemo and six weeks of full brain and spine proton radiation this time. After six months he relapsed again. Then …

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Shaun

Back on June 12th, 2018, my son Shaun was rushed to the hospital where we found out he had a brain tumor that had ruptured. After 2 brain surgeries that early morning and a week in ICU, we found out that he had a type of brain cancer called Medulloblastoma. We immediately started a treatment …

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Megan

My daughter Megan is 15 years old and fighting a high-grade Glioma in her spinal cord. It is considered Glioblastoma Multiforme grade 4, but with a rare presentation in her spinal cord. She had emergency surgery on October 1, 2018, after becoming nearly paralyzed over a 12 hour period. The day before this all happened, …

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Daniel

Our son Daniel, age 6, was diagnosed with Medulloblastoma in March 2016 at age 3 and is currently in remission.  Traditional treatment for Medulloblastoma involves surgery to remove as much of the tumor as possible followed by full brain and spine radiation and then chemotherapy.  We were advised that the likely impact of full brain …

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Canyon

Canyon was diagnosed with suprasellar glioma at 4 months old. The cancer is inoperable and has also spread down the spinal cord. Next week he will receive his 35th chemotherapy treatment called vinblastine. Doctors are not sure of our future. He is currently 1 year and 2 months old and he is known as #CanyonStrong/Courageously …

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Addison

Addie is a spunky, smart, sweet and loving 5-year-old. In May of 2017 at the age of three Addie had a seizure while we were on vacation in Florida. It would be three months before we were finally able to have an MRI but on August 9th of 2017, we were told that our daughter …

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Katie

Katie Rose was diagnosed with congenital glioblastoma at 4 weeks old. She had brain surgery to remove as much as possible of the tumor and is now undergoing inpatient chemotherapy.The night she was admitted and the mass was discovered, her medical team could not assure us she would survive the night. She did and she …

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Abby

My little girl Abby was diagnosed with Medulloblastoma on May 3rd of 2018. After suffering severe headaches then it escalated to vomiting also. Waking up with headaches. We took her into her doctor shortly after Easter, then to a neurologist on May 3rd who scoffed it off as allergy-induced migraines. He proceeded to tell us …

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