Please use the form below to tell us about your child. There is a place to upload their photo as well. We do our best to have all submissions updated on the site within a week after they are submitted. Thank you for allowing us to share your journey with others!
Isaac was dx at 3 yrs old. He did four months of chemo and six weeks of proton radiation. He was cancer free for eighteen months and before he relapsed. He did two months of chemo and six weeks of full brain and spine proton radiation this time. After six months he relapsed again. Then
So, how we arrived here… A few months back we noticed a slight tremor in Grayson’s hands, primarily in the morning along with some delayed speech development. We immediately began speech therapy, where our speech therapist, Heather, along with our friend Charity advised that due to the above-mentioned tremor we should engage a Neurologist to
My daughter Megan is 15 years old and fighting a high-grade Glioma in her spinal cord. It is considered Glioblastoma Multiforme grade 4, but with a rare presentation in her spinal cord. She had emergency surgery on October 1, 2018, after becoming nearly paralyzed over a 12 hour period. The day before this all happened,
