Please use the form below to tell us about your child. There is a place to upload their photo as well. We do our best to have all submissions updated on the site within a week after they are submitted. Thank you for allowing us to share your journey with others!
Isaac was dx at 3 yrs old. He did four months of chemo and six weeks of proton radiation. He was cancer free for eighteen months and before he relapsed. He did two months of chemo and six weeks of full brain and spine proton radiation this time. After six months he relapsed again. Then
Briley Grace was born and by all accounts appeared healthy, but at about 12 hours her dad noticed that Briley was struggling to breathe, panting or what looked like she was trying to catch her breath. Shortly after, she was diagnosed with a congenital heart defect- Tetralogy of Fallot. To be diagnosed with TOF your
Our son Daniel, age 6, was diagnosed with Medulloblastoma in March 2016 at age 3 and is currently in remission. Traditional treatment for Medulloblastoma involves surgery to remove as much of the tumor as possible followed by full brain and spine radiation and then chemotherapy. We were advised that the likely impact of full brain
