Please use the form below to tell us about your child. There is a place to upload their photo as well. We do our best to have all submissions updated on the site within a week after they are submitted. Thank you for allowing us to share your journey with others!
Isaac was dx at 3 yrs old. He did four months of chemo and six weeks of proton radiation. He was cancer free for eighteen months and before he relapsed. He did two months of chemo and six weeks of full brain and spine proton radiation this time. After six months he relapsed again. Then
Addie is a spunky, smart, sweet and loving 5-year-old. In May of 2017 at the age of three Addie had a seizure while we were on vacation in Florida. It would be three months before we were finally able to have an MRI but on August 9th of 2017, we were told that our daughter
Our son Daniel, age 6, was diagnosed with Medulloblastoma in March 2016 at age 3 and is currently in remission. Traditional treatment for Medulloblastoma involves surgery to remove as much of the tumor as possible followed by full brain and spine radiation and then chemotherapy. We were advised that the likely impact of full brain
