Canyon was diagnosed with suprasellar glioma at 4 months old. The cancer is inoperable and has also spread down the spinal cord. Next week he will receive his 35th chemotherapy treatment called vinblastine. Doctors are not sure of our future. He is currently 1 year and 2 months old and he is known as #CanyonStrong/Courageously …
Addie is a spunky, smart, sweet and loving 5-year-old. In May of 2017 at the age of three Addie had a seizure while we were on vacation in Florida. It would be three months before we were finally able to have an MRI but on August 9th of 2017, we were told that our daughter …
Katie Rose was diagnosed with congenital glioblastoma at 4 weeks old. She had brain surgery to remove as much as possible of the tumor and is now undergoing inpatient chemotherapy.The night she was admitted and the mass was discovered, her medical team could not assure us she would survive the night. She did and she …
My little girl Abby was diagnosed with Medulloblastoma on May 3rd of 2018. After suffering severe headaches then it escalated to vomiting also. Waking up with headaches. We took her into her doctor shortly after Easter, then to a neurologist on May 3rd who scoffed it off as allergy-induced migraines. He proceeded to tell us …
Alvie was born in early October a full term, happy and healthy baby. The first few months went by as smoothly as any first-time parents experience could be with a happy go lucky little boy. But around seven months old Alvie started to get sick, very subtly at first but more and more as time …
So, how we arrived here… A few months back we noticed a slight tremor in Grayson’s hands, primarily in the morning along with some delayed speech development. We immediately began speech therapy, where our speech therapist, Heather, along with our friend Charity advised that due to the above-mentioned tremor we should engage a Neurologist to …
Sarah is a 12-year-old girl who, in January 2018, was diagnosed with an aggressive stage 4 brain cancer, called glioblastoma (GBM). Over the course of a year, she’s undergone two surgeries, stayed overnight in the hospital two full weeks and has, for increased health risks, been admitted to the ER. She’s completed 34 rounds of …
Briley Grace was born and by all accounts appeared healthy, but at about 12 hours her dad noticed that Briley was struggling to breathe, panting or what looked like she was trying to catch her breath. Shortly after, she was diagnosed with a congenital heart defect- Tetralogy of Fallot. To be diagnosed with TOF your …
Stanley Harbour Evans, otherwise known as SuperStan, was an amazing little boy with a beautiful smile and a heart of gold. SuperStan was a courageous boy who bravely endured chemotherapy and 3 stem cell transplants to conquer medulloblastoma, a form of brain cancer, all at the young age of 2. Stan also had three eye …
“I think you should have a seat”…. The worst seven words a parent can hear. On December 1st, Maggie-Jo Roqueni aka “MJ the Fighter” was a 3-year-old who was struggling to keep food down and visited a Gastroenterologist doctor after months of no relief. After about 3 minutes he sent us immediately to the Emergency …
