This sweet boy has been in our lives now for seven months, the best seven months of our lives. In January, we noticed some bumps on his back in the muscle between the ribs. We were initially dismissive, but the bumps kept getting larger. We ended up doing an ultrasound, then an MRI, then a
Carson was born hypotonic and started receiving physical therapy at 4 months of age. He was referred to neurology at that time as well. He was pretty much blind and his head circumference had increased 9 cm since birth. All body scans were completed and the MRI of his brain showed some changes within the
Isaac was dx at 3 yrs old. He did four months of chemo and six weeks of proton radiation. He was cancer free for eighteen months and before he relapsed. He did two months of chemo and six weeks of full brain and spine proton radiation this time. After six months he relapsed again. Then
Back on June 12th, 2018, my son Shaun was rushed to the hospital where we found out he had a brain tumor that had ruptured. After 2 brain surgeries that early morning and a week in ICU, we found out that he had a type of brain cancer called Medulloblastoma. We immediately started a treatment
My daughter Megan is 15 years old and fighting a high-grade Glioma in her spinal cord. It is considered Glioblastoma Multiforme grade 4, but with a rare presentation in her spinal cord. She had emergency surgery on October 1, 2018, after becoming nearly paralyzed over a 12 hour period. The day before this all happened,
Our son Daniel, age 6, was diagnosed with Medulloblastoma in March 2016 at age 3 and is currently in remission. Traditional treatment for Medulloblastoma involves surgery to remove as much of the tumor as possible followed by full brain and spine radiation and then chemotherapy. We were advised that the likely impact of full brain
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This sweet boy has been in our lives now for seven months, the best seven months of our lives. In January, we noticed some bumps on his back in the muscle between the ribs. We were initially dismissive, but the bumps kept getting larger. We ended up doing an ultrasound, then an MRI, then a
Carson was born hypotonic and started receiving physical therapy at 4 months of age. He was referred to neurology at that time as well. He was pretty much blind and his head circumference had increased 9 cm since birth. All body scans were completed and the MRI of his brain showed some changes within the
Isaac was dx at 3 yrs old. He did four months of chemo and six weeks of proton radiation. He was cancer free for eighteen months and before he relapsed. He did two months of chemo and six weeks of full brain and spine proton radiation this time. After six months he relapsed again. Then
Back on June 12th, 2018, my son Shaun was rushed to the hospital where we found out he had a brain tumor that had ruptured. After 2 brain surgeries that early morning and a week in ICU, we found out that he had a type of brain cancer called Medulloblastoma. We immediately started a treatment
My daughter Megan is 15 years old and fighting a high-grade Glioma in her spinal cord. It is considered Glioblastoma Multiforme grade 4, but with a rare presentation in her spinal cord. She had emergency surgery on October 1, 2018, after becoming nearly paralyzed over a 12 hour period. The day before this all happened,
