Please use the form below to tell us about your child. There is a place to upload their photo as well. We do our best to have all submissions updated on the site within a week after they are submitted. Thank you for allowing us to share your journey with others!
My little girl Abby was diagnosed with Medulloblastoma on May 3rd of 2018. After suffering severe headaches then it escalated to vomiting also. Waking up with headaches. We took her into her doctor shortly after Easter, then to a neurologist on May 3rd who scoffed it off as allergy-induced migraines. He proceeded to tell us
Carson was born hypotonic and started receiving physical therapy at 4 months of age. He was referred to neurology at that time as well. He was pretty much blind and his head circumference had increased 9 cm since birth. All body scans were completed and the MRI of his brain showed some changes within the
“I think you should have a seat”…. The worst seven words a parent can hear. On December 1st, Maggie-Jo Roqueni aka “MJ the Fighter” was a 3-year-old who was struggling to keep food down and visited a Gastroenterologist doctor after months of no relief. After about 3 minutes he sent us immediately to the Emergency
