Please use the form below to tell us about your child. There is a place to upload their photo as well. We do our best to have all submissions updated on the site within a week after they are submitted. Thank you for allowing us to share your journey with others!
Carson was born hypotonic and started receiving physical therapy at 4 months of age. He was referred to neurology at that time as well. He was pretty much blind and his head circumference had increased 9 cm since birth. All body scans were completed and the MRI of his brain showed some changes within the
So, how we arrived here… A few months back we noticed a slight tremor in Grayson’s hands, primarily in the morning along with some delayed speech development. We immediately began speech therapy, where our speech therapist, Heather, along with our friend Charity advised that due to the above-mentioned tremor we should engage a Neurologist to
Alvie was born in early October a full term, happy and healthy baby. The first few months went by as smoothly as any first-time parents experience could be with a happy go lucky little boy. But around seven months old Alvie started to get sick, very subtly at first but more and more as time
