Friends of Layla Stories

Always A Friend

If there’s one thing people remember about Layla, it’s that she was a friend to everyone. She was the first to greet a new student at school or say hello to a stranger at the store. We like to think of her in Heaven as the “official greeter”. Through our journey, we have made so many new friends. Some are survivors, some are fighters, and sadly some are angels like Layla. It’s our honor to share their stories, in the words of their families.
Friend Stories

Lucas

This sweet boy has been in our lives now for seven months, the best seven months of our lives. In January, we noticed some bumps on his back in the muscle between the ribs. We were initially dismissive, but the bumps kept getting larger. We ended up doing an ultrasound, then an MRI, then a

Read More »
Friend Stories

Carson

Carson was born hypotonic and started receiving physical therapy at 4 months of age. He was referred to neurology at that time as well. He was pretty much blind and his head circumference had increased 9 cm since birth. All body scans were completed and the MRI of his brain showed some changes within the

Read More »
Friend Stories

Isaac

Isaac was dx at 3 yrs old. He did four months of chemo and six weeks of proton radiation. He was cancer free for eighteen months and before he relapsed. He did two months of chemo and six weeks of full brain and spine proton radiation this time. After six months he relapsed again. Then

Read More »
Friend Stories

Shaun

Back on June 12th, 2018, my son Shaun was rushed to the hospital where we found out he had a brain tumor that had ruptured. After 2 brain surgeries that early morning and a week in ICU, we found out that he had a type of brain cancer called Medulloblastoma. We immediately started a treatment

Read More »
Friend Stories

Megan

My daughter Megan is 15 years old and fighting a high-grade Glioma in her spinal cord. It is considered Glioblastoma Multiforme grade 4, but with a rare presentation in her spinal cord. She had emergency surgery on October 1, 2018, after becoming nearly paralyzed over a 12 hour period. The day before this all happened,

Read More »
Friend Stories

Daniel

Our son Daniel, age 6, was diagnosed with Medulloblastoma in March 2016 at age 3 and is currently in remission.  Traditional treatment for Medulloblastoma involves surgery to remove as much of the tumor as possible followed by full brain and spine radiation and then chemotherapy.  We were advised that the likely impact of full brain

Read More »

Submit Your Story

Please use the link below to tell us about your child. There is a place to upload their photo as well. We do our best to have all submissions updated on the site within a week after they are submitted. Thank you for allowing us to share your journey with others!

More Stories:

Lucas

This sweet boy has been in our lives now for seven months, the best seven months of our lives. In January, we noticed some bumps on his back in the muscle between the ribs. We were initially dismissive, but the bumps kept getting larger. We ended up doing an ultrasound, then an MRI, then a

Read More »

Carson

Carson was born hypotonic and started receiving physical therapy at 4 months of age. He was referred to neurology at that time as well. He was pretty much blind and his head circumference had increased 9 cm since birth. All body scans were completed and the MRI of his brain showed some changes within the

Read More »

Isaac

Isaac was dx at 3 yrs old. He did four months of chemo and six weeks of proton radiation. He was cancer free for eighteen months and before he relapsed. He did two months of chemo and six weeks of full brain and spine proton radiation this time. After six months he relapsed again. Then

Read More »

Shaun

Back on June 12th, 2018, my son Shaun was rushed to the hospital where we found out he had a brain tumor that had ruptured. After 2 brain surgeries that early morning and a week in ICU, we found out that he had a type of brain cancer called Medulloblastoma. We immediately started a treatment

Read More »

Megan

My daughter Megan is 15 years old and fighting a high-grade Glioma in her spinal cord. It is considered Glioblastoma Multiforme grade 4, but with a rare presentation in her spinal cord. She had emergency surgery on October 1, 2018, after becoming nearly paralyzed over a 12 hour period. The day before this all happened,

Read More »
Scroll to Top