It feels like a million years since I blogged. So much has happened in the past 2 weeks. Some good, some bad, even a little bit life changing. The week after the most recent MRI we were in full blown “golf” mode for the tournament on the 31st. Everything went off beautifully and a fantastic time was had by all. No rest for the weary though. The next day was Layla’s pre op appointment with the neurosurgeon and then her surgery was the next day. We spent one night in the hospital and came home Thursday. We took it easy Friday and that’s the plan for the rest of the weekend.
Monday will be the beginning of our next adventure. We start Layla’s newest chemo protocol which includes inter-cranial injections (basically chemo right into her brain). As you can imagine, it will be a challenge to keep a 4 year old still while the doctor puts a needle in her noggin. Don’t worry, it will be numb and she won’t feel anything. We would appreciate prayers for her courage and the ability for her to sit still for a minute. We’ll have to do that every day next week. Then we have a series of medications she’ll be taking at home over the next 6 weeks. After that we’ll have another MRI.
School starts soon, which will be a welcome distraction for everyone. We’ll get into a new routine with treatment and find normal for the next 6 weeks. God willing this new treatment will show positive results. We could really use a win 👍🏼
Bryan and I thank you all for the daily prayers.
Sara Stamp
Layla’s Legacy Foundation is a 501(c)(3) organization funding innovative pediatric brain cancer research while bringing hope and help to families impacted by the disease.
Our Story
In October 2016, the Stamp family was devastated by the news that their 4-year-old daughter, Layla, had a form of pediatric brain cancer called Medulloblastoma. Even after surgery, months of chemotherapy and radiation, Layla’s cancer returned. For 14 months the family fought and tried every possible treatment available only to lose Layla on November 11, 2017, shortly after her 5th birthday.
During their journey, the Stamps learned just how little funding there was for pediatric cancers and also how difficult it can be for families financially. Layla’s Legacy was founded to create change in research, to be advocates of the disease and to help support families by offsetting costs where needed. In their mind, it was time to Do More for our kids.
